Support the work of Feeding Matters

In the last two years (2024-2026), the members of the Family-Centered PFD Research Consortium have worked hard to use our lived experience as caregivers and adults with PFD and/or ARFID to inform research capacity. As a group, we are laying out the most important and relevant first-steps concepts in a peer-reviewed paper, which we'd like researchers in the field of feeding and eating to prioritize. The work of our Consortium is truly changing the field, and we are honored, humbled, and grateful that Feeding Matters has not only invited us to the research table, but put us at the head.

This May, during PFD and ARFID Awareness Month, we are coming together to ask our friends, family, neighbors, and community to support this important cause. Please consider making a donation to Feeding Matters, as they continue making way for family- and patient-centered care in the form of research, education, advocacy, and support.

Every dollar counts. Help us shout from the rooftops that FEEDING MATTERS.

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Meet some of us!

Leilani

My son, Jeremiah, who is 9 years old, has a complex medical history, which included a 7 month extended stay at Kapiolani Medical Center NICU, due to a conditon called volvulus. More than 1/2 of his small intestines were removed. He has had feeding challenges since birth. He currently has a feeding tube in his stomach where he receives most of his nutrition. In a recent feeding therapy session, he was able to bite and chew on a soft small piece of carrot and celery and swallow. We are currently working on getting him into a intensive feeding program in California because the resources here in Hawai'i are very limited.

Heidi

We are the Luhmann family. We have 3 kids and two of them have celiac. My middle also struggles with PFD and ARFID. As a family we have relied on our medical professionals and Feeding Matters to help us learn about feeding differences and help our middle child thrive.

Jena

Our daughter Palmer was diagnosed with feeding challenges back in March of 2020. Shortly after we learned about Feeding Matters and have enjoyed being part of the Power of Two program as a mentor and joining the consortium to help with research within this space. Palmer is still on a g-tube but is making big strides to eat by mouth and hopefully have her tube removed. It has been a long journey but we have been happy to have Feeding Matters by our side. Please consider giving to this amazing organization so other families can be supported like ours has been.